A Bray mother has taken to Social Media in an effort to raise awareness of vascular and lymphatic malformation.
Kirsty McKenna made a desperate plea this week on Face book after her son Mathis took a turn for the worst.
Kirsty’s message on Social Media reads as follows.
“Usually I wouldn’t post concerning my babies medical condition, but I’ve reached my wits end, he has a vascular and lymphatic malformation.
It was stable for about two year’s but in the past four month’s has progressed in size, drastically.
This has caused ongoing discomfort and pain for him, seizures, nose bleeds, bruising, he cannot chew on the right side of his mouth, his teeth are being pushed causing extreme pain and affecting him , his quality of life has been affected significantly!
But apparently that’s not important, as Mathis cannot talk, because he’s already brain damage!
It has been suggested that because his malformation is extensive that it should be left, as it’s too big to remove ! And it’s getting bigger !
This infuriates me where’s the logic ??
They can remove it now ! It’s possible with radiation to reduce the size , and then surgically remove it once reduced in size !
So why wait until it’s too late ? Why wait until his sight is affected ? Why wait for his airways to be blocked ? Why wait until it’s too late ?
As a mother it’s killing me , I feel powerless and I am forced to watch my baby live in pain with it only getting worse I cannot believe that the medical industries have just become about making money , and not saving lives !
Your life is only worth saving if you have the money to save it ! It is clear what is wrong with this world !”
A family member has set up a GoFund me page, you can make a donation here